1 SEPTEMBER IS WORLD CLL DAY

Every 1 September, the global CLL community unites to raise awareness about chronic lymphocytic leukemia (CLL) and give those affected by a diagnosis of CLL a much needed voice. On World CLL Day we come together to improve understanding of the vulnerability of CLL patients and the challenges involved in living with CLL.

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Jan (Ireland)

“Living with the constant risk of infection has changed how I move through the world. I always need to risk-assess a situation and it places an added burden on me and my family when making plans. It’s a tough time to be immune compromised right now and it would be a little easier if there was greater general awareness about the impact of infection on people with weakened immune systems”

Nick (UK)

“From the outside I may look well, but, am often struggling to cope with uncertainties, the isolation, stress and worry that life with CLL can cause. Thank you to those who take the time to see this and help me to work this through when I feel alone with this.”

Brian (USA)

“The CLL journey may be long and full of joyful and dark moments, but it never has to be taken alone. Fellow CLL patients, dedicated advocates, nonprofits, and charities are all there to shine some light into the darkest corners and share the good and bad time.”

Drazen B. (Croatia)

“When CLL – for who knows what reason – chose me in my 49th year of life, I decided to fight against it, without any fear, with the strength of my irreparable optimism, modern medicine and unconditional trust in my hematologist!”

Michael (Ireland)

“Having someone in my family with CLL can create unique difficulties. I feel concerned about the various challenges that we must navigate, and it adds stress to my day which has a knock-on effect on my role as a carer.”

Apendavyo (Tanzania)

“Bringing together people who have leukemia will provide a platform where experiences can be shared, and strategies put in place on how awareness can be increased.”

Heather (Canada)

“In 2018 my CLL took a turn for the worse. I started catching one pneumonia after another and suffered from extreme fatigue. Things got better when I started treatment, then COVID hit. My two young daughters bring home all sorts of germs from school, so I bought a medical grade air purifier, I wore a mask and we distanced ourselves in the house as much as possible. I managed to stay infection free all winter. Since early May this year I’ve stopped masking with the kids and we are back living normally”

World CLL Day

1 September 2023